Additional
Information: Cystinosis is a rare genetic disease affecting both children and adults.
Cystinosis Sites:
Cystinosis Research Network Cystinosis Research Network: Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources. (Cystinosis) http://www.cystinosis.org
Cystinosis Foundation Cystinosis Foundation: Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising. (Cystinosis) http://www.cystinosisfoundation.org
Cystinosis Central Cystinosis Central: Information about this disorder, conferences, data for physicians, updates and links. (Cystinosis) http://medicine.ucsd.edu/cystinosis/INDEX.htm