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Suite 101
Suite 101: Offers links and articles about Porphyria. (Porphyrias)
http://www.suite101.com/welcome.cfm/porphyria |
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Canadian Porphyria Foundation
Canadian Porphyria Foundation: Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information. (Porphyrias)
http://www.cpf-inc.ca/ |
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Porphgroup
Porphgroup: An e-mail group at Yahoo dealing with the metabolic disease porphyria. (Porphyrias)
http://groups.yahoo.com/group/porphgroup/ |
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Porphyria: The Unknown Disease
Porphyria: The Unknown Disease: Genetic metabolic disorder. Overview of types, testing and diagnosis, and links. (Porphyrias)
http://members.tripod.com/~PorphBook/ |
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Porphyrias: Diagnosis and Treatment
Porphyrias: Diagnosis and Treatment: Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed. (Porphyrias)
http://www.medstudents.com.br/metdis/metdis3.htm |
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Porphyria: The Woman Who Has The Vampire Disease
Porphyria: The Woman Who Has The Vampire Disease: Review on this book on porphyria written by Lenore B. Weinstein. (Porphyrias)
http://www.vampyres.com/content/reviews/detailed/372.html |
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EPP
EPP: Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias. (Porphyrias)
http://members.tripod.com/~Alzuko/epp.htm |
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Porphyria Hub
Porphyria Hub: Links to overviews, full text articles, diagnosis and treatment and research projects. (Porphyrias)
http://www.knowdeep.org/porphyria |
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Me and AIP
Me and AIP: Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment. (Porphyrias)
http://hometown.aol.com/heyjude957/aip.html |
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King George II and Porphyria
King George II and Porphyria: Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution. (Porphyrias)
http://www.mhhe.com/biosci/ap/seeleyap/cardio/reading20.mhtml |
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Prophyria in Charlottesville
Prophyria in Charlottesville: An e-mail sent to Professor Huskey from a person working on a rescue squad. (Porphyrias)
http://www.people.virginia.edu/~rjh9u/porphyriaemail.html |
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Diagnosing the Porphyrias
Diagnosing the Porphyrias: An article by Thomas G. DeLoughery, Associate Professor of Medicine. (Porphyrias)
http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml |
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Acute Intermittent Porphyria Forum
Acute Intermittent Porphyria Forum: Information and links about Porph. Includes registration form for an email list. (Porphyrias)
http://members.tripod.com/~theaipforum/ |
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The American Porphyria Foundation
The American Porphyria Foundation: Non-profit organization advancing awareness, research, and treatment of Porphyria. Fact sheets and links to related resources. (Porphyrias)
http://www.enterprise.net/apf/ |
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Porphyria
Porphyria: From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome. (Porphyrias)
http://groups.yahoo.com/group/porphyria/ |
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Porphyria Page
Porphyria Page: A patient guide for all people with this disorder. Compiled by Professor Michael Moore. (Porphyrias)
http://www.uq.edu.au/porphyria/ |