Tuberous Sclerosis (Neurodegenerative Diseases)

Tuberous Sclerosis Sites:

National Library of Medicine National Library of Medicine: A list of synonyms, a summary and major features of tuberous sclerosis. (Tuberous Sclerosis) http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=tuberous+sclerosis&field=name Tuberous Sclerosis Association Tuberous Sclerosis Association: UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition. (Tuberous Sclerosis) http://www.tuberous-sclerosis.org/ Pediatric Oncall- Tuberous Sclerosis Pediatric Oncall- Tuberous Sclerosis: Offers commonly asked questions about this disease. (Tuberous Sclerosis) http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp Tuberous Sclerosis Tuberous Sclerosis: A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke. (Tuberous Sclerosis) http://www.ninds.nih.gov/health_and_medical/disorders/tuberous_sclerosis.htm Tuberous Sclerosis - Lisa's Site Tuberous Sclerosis - Lisa's Site: An incurable genetic condition that causes tumors to grow in various places in the body. (Tuberous Sclerosis) http://www.title14.com/ts/ Matthew's Site for Tuberous Sclerosis Awareness Matthew's Site for Tuberous Sclerosis Awareness: Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories. (Tuberous Sclerosis) http://www.angelfire.com/la3/tsc NORD: Tuberous Sclerosis NORD: Tuberous Sclerosis: Offers alternative names, a general discussion and further resources. (Tuberous Sclerosis) http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis Tuberous Sclerosis Fact Sheet Tuberous Sclerosis Fact Sheet: Developed by the National Institute of Neurological Disorders and Stroke (NINDS). (Tuberous Sclerosis) http://www.ninds.nih.gov/health_and_medical/pubs/tuberous_sclerosis.htm Information and support for persons affected by Tuberous Sclerosis Complex in Canada. Information and support for persons affected by Tuberous Sclerosis Complex in Canada.: Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections. (Tuberous Sclerosis) http://www.tscst.org Tuberous Sclerosis Hub Tuberous Sclerosis Hub: A brief definition of, followed by links to overviews, research articles, case reports and images. (Tuberous Sclerosis) http://www.healthubs.com/tuberous Tuberous Sclerosis Alliance Tuberous Sclerosis Alliance: US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families. (Tuberous Sclerosis) http://www.tsalliance.org/ Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program: Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis. (Tuberous Sclerosis) http://www.cincinnatichildrens.org/Programs_Services/229/index.asp Marian's Life with Tuberous Sclerosis Marian's Life with Tuberous Sclerosis: Marian's story. Information about the disease, pictures, contacts, medicine, links. (Tuberous Sclerosis) http://www.expatworld.de/marian Team Tamara Team Tamara: Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates. (Tuberous Sclerosis) http://www.team-tamara.org Kolten's Tuberous Sclerosis Page Kolten's Tuberous Sclerosis Page: Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him. (Tuberous Sclerosis) http://www.Kolten.homestead.com/Kolten.html