Organizations (Muscular Dystrophies)

Organizations Sites:

Muscular Dystrophy Ireland Muscular Dystrophy Ireland: Voluntary organization in Ireland which provides support for people with muscular dystrophy and their families. (Organizations) http://www.mdi.ie/ Facioscapulohumeral Muscular Dystrophy Society Facioscapulohumeral Muscular Dystrophy Society: The FSH Society address issues and needs related to FacioScapuloHumeral Muscular Dystrophy (FSHD). (Organizations) http://www.fshsociety.org The Muscular Dystrophy Campaign (UK) The Muscular Dystrophy Campaign (UK): A UK-based charity which funds medical research and support services for people with neuromuscular conditions. Site contains detailed information about duchenne, becker and many other conditions. Sections on education, care, physiotherapy, research and wa (Organizations) http://www.muscular-dystrophy.org/ Cell Therapy Research Foundation Cell Therapy Research Foundation: Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials. (Organizations) http://www.celltherapy.com/ Parent Project Muscular Dystrophy in Nepal Parent Project Muscular Dystrophy in Nepal: Parent Project Muscular Dystrophy in Nepal focuses on Duchenne and Becker Muscular Dystrophy, by providing practical, medical and emotional support to the people and families affected by the condition. (Organizations) http://www.parentprojectmd.org.np/ Parent Project Muscular Dystrophy Parent Project Muscular Dystrophy: Parent Project Muscular Dystrophy is a not-for-profit organization founded in 1994 by parents of children with Duchenne and Becker Muscular Dystrophy. (Organizations) http://www.parentprojectmd.org Muscular Dystrophy Canada Muscular Dystrophy Canada: National voluntary agency committed to eliminating neuromuscular disorders. (Organizations) http://www.mdac.ca/ Focus On the Cure Foundation Focus On the Cure Foundation: Focus On the Cure Foundation raises funds that go directly toward supporting research for a cure of Duchenne Muscular Dystrophy. (Organizations) http://adkconnection.com/FOTC/ Muscular Dystrophy Association of New Zealand Muscular Dystrophy Association of New Zealand: Organization dedicated to serving people with muscular dystrophy and other neuromuscular diseases who live in New Zealand. (Organizations) http://www.mda.org.nz/ Muscular Dystrophy Association (Australia) Muscular Dystrophy Association (Australia): Extensive information on the range of disorders, research information and many links to onsite publications. Also provides an international support network with a chat service dedicated for use by the worldwide Muscular Dystrophy community. (Organizations) http://www.mda.org.au/ Muscular Dystrophy Association (USA) Muscular Dystrophy Association (USA): Voluntary health agency providing information and supporting research into neuromuscular diseases, including Muscular Dystrophy. The MDA site contains information about many forms of muscular dystrophy, including lists of ongoing clinical trials, an &quo (Organizations) http://www.mdausa.org/ Muscular Dystrophy Association (South Australia) Muscular Dystrophy Association (South Australia): The Muscular Dystrophy Association of South Australia provides a range of individually designed support services for all persons with muscular dystrophy and neuromuscular disorders, their families and their carer/support provider, including therapy, infor (Organizations) http://www.mdasa.org.au/ Logan Paige Foundation for Myotonic Dystrophy Logan Paige Foundation for Myotonic Dystrophy: Dedicated to educating potential parents about Myotonic Dystrophy and genetic testing. Information about fundraising, both for research and to assist people who cannot afford testing, news, stories, and about Logan Paige. (Organizations) http://www.loganpaige.org/ Muscular Dystrophy Association Singapore Muscular Dystrophy Association Singapore: Muscular Dystrophy Association Singapore (MDAS) is a self-help organization committed to uplift the lives of people with Muscular Dystrophy. (Organizations) http://www.mdas.org.sg Parent Project UK Parent Project UK: Parent Project UK is a charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy that promotes research to find a cure or viable treatments. (Organizations) http://www.ppuk.org Muscular Dystrophy Campaign Northern Ireland Muscular Dystrophy Campaign Northern Ireland: Northern Ireland branch of Muscular Dystrophy Campaign includes news, events, staff profiles, information about the Regional Muscle Clinic and a web directory. (Organizations) http://www.mdcni.org.uk/ Society for Muscular Dystrophy Information International Society for Muscular Dystrophy Information International: Features organization background, disease information, newsletters, membership information, resources, and contact details. (Organizations) http://users.auracom.com/smdi/ Muscular Dystrophy Family Foundation Muscular Dystrophy Family Foundation: Nonprofit foundation that provides adaptive equipment and emotional support to individuals and families affected by any one of 40 neuromuscular diseases. (Organizations) http://www.mdff.org/ Muscular Dystrophy Association of Slovenia Muscular Dystrophy Association of Slovenia: Muscular Dystrophy Association of Slovenia (Organizations) http://www.drustvo-distrofikov.si/