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FSH Friends
FSH Friends: This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy. (Muscular Dystrophies)
http://www.infowest.com/personal/a/alan/FSH/Friends2/ |
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DMD Options
DMD Options: Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy. (Muscular Dystrophies)
http://www.dmdoptions.com |
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DMD Information and Resources for Teachers
DMD Information and Resources for Teachers: Information for teachers of children with Duchenne Muscular Dystrophy (DMD). (Muscular Dystrophies)
http://www.uni-potsdam.de/u/germanistik/ls_dgs/teachers.html |
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Duchennes
Duchennes: Provides links to medical and non-medical organizations and people with Duchennes problems. (Muscular Dystrophies)
http://www.ducennes.addr.com/ |
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Muscular Dystrophy Campaign
Muscular Dystrophy Campaign: Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK. (Muscular Dystrophies)
http://www.see-search.com/musculardystrophycampaign.htm |
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Becker Muscular Dystrophy Information Exchange
Becker Muscular Dystrophy Information Exchange: Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease. (Muscular Dystrophies)
http://www.beckermusculardystrophy.org |
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Duchenne/Becker Muscular Dystrophy
Duchenne/Becker Muscular Dystrophy: Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy. (Muscular Dystrophies)
http://www.ygyh.org/dmd/ |
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HealtHub
HealtHub: A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations. (Muscular Dystrophies)
http://www.healthubs.com/dystrophy |
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Dr. John R. Bach - The DMD/SMA/ALS Doc
Dr. John R. Bach - The DMD/SMA/ALS Doc: This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care. (Muscular Dystrophies)
http://www.doctorbach.com/ |
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My Life Caring For My Son Who Has Duchenne Muscular Dystrophy
My Life Caring For My Son Who Has Duchenne Muscular Dystrophy: Caring for a child with the following problems duchenne muscular dystrophy,congenital adrenal hypoplasia and glycerol kinase deficiency. (Muscular Dystrophies)
http://musculardystrophy.mysite.freeserve.com |
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Muscular Dystrophy Community
Muscular Dystrophy Community: Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers. (Muscular Dystrophies)
http://community.healingwell.com/community/?f=43 |
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Ask NOAH About: Muscular Dystrophy
Ask NOAH About: Muscular Dystrophy: The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health). (Muscular Dystrophies)
http://www.noah-health.org/english/illness/neuro/musdys.html |
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DMD Information
DMD Information: Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options. (Muscular Dystrophies)
http://www.angelfire.com/band/teja/infofram.htm |
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General Practice Notebook - Duchenne muscular dystrophy
General Practice Notebook - Duchenne muscular dystrophy: Clinically-oriented information. (Muscular Dystrophies)
http://www.gpnotebook.co.uk/MedwebPage.cfm?ID=-885719035 |
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Living For Today, Preparing For Tomorrow
Living For Today, Preparing For Tomorrow: Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories. (Muscular Dystrophies)
http://www.livingfortoday.org |
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National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
National Registry of Myotonic Dystrophy and FSHD Patients and Family Members: Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information. (Muscular Dystrophies)
http://www.urmc.rochester.edu/nihregistry/ |
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MDA Ride For Life
MDA Ride For Life: Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May. (Muscular Dystrophies)
http://www.mdarideforlife.org/ |
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NINDS Muscular Dystrophy Information Page
NINDS Muscular Dystrophy Information Page: Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). (Muscular Dystrophies)
http://www.ninds.nih.gov/health_and_medical/disorders/md.htm |
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A Guide for Parents
A Guide for Parents: This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living. (Muscular Dystrophies)
http://www.mda.org.au/publication/guide/mdaguide.html |
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DMDpioneers.org Forums
DMDpioneers.org Forums: Forum about living with Duchenne Muscular Dystrophy. Discuss prolonged survival, daily living and quality of life issues for people with DMD. (Muscular Dystrophies)
http://www.dmdpioneers.org/forum/ |