Marfan Syndrome (Connective Tissue)

Marfan Syndrome Sites:

Jeanette Navia's Marfan Life Website Jeanette Navia's Marfan Life Website: Including lists of penpals and other ways to connect with the community as well as information about the Syndrome. (Marfan Syndrome) http://www.marfanlife.org Polish Marfan Association Polish Marfan Association: General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations. (Marfan Syndrome) http://www.marfan.sprint.pl/ Sports and Marfan Syndrome Sports and Marfan Syndrome: Article on the risks of sports participation. (Marfan Syndrome) http://www.physsportsmed.com/issues/2001/05_01/salim.htm MFS Type 1 Fibrillin Gene MFS Type 1 Fibrillin Gene: A comprehensive site including major resources listed as well as genetic information. (Marfan Syndrome) http://www3.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700 National Marfan Foundation National Marfan Foundation: Providing accurate and timely information about the disorder to patients, family members and physicians. (Marfan Syndrome) http://www.marfan.org/ Theresa E. Pageau - A Memorial Tribute Theresa E. Pageau - A Memorial Tribute: A tribute to a patient with this disease accompanied by information and links related to donating. (Marfan Syndrome) http://solo23.abac.com/billrobert/Theresa/theresa1.html Marfan Support and Information Marfan Support and Information: Support group in New South Wales, Australia. (Marfan Syndrome) http://www.marfan.net.au eCureMe.com -- Marfan's Syndrome eCureMe.com -- Marfan's Syndrome: Description, symptoms, diagnoses, treatment and other information with a couple of similar disorders for comparison. (Marfan Syndrome) http://www.ecureme.com/emyhealth/data/Marfan's_Syndrome.asp Marfan Syndrome Forum Marfan Syndrome Forum: Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research. (Marfan Syndrome) http://hometown.aol.com/bjthaler6/myhomepage/ American Heart Association - Marfan's Syndrome American Heart Association - Marfan's Syndrome: Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions. (Marfan Syndrome) http://www.americanheart.org/presenter.jhtml?identifier=4672 Marfan-List Marfan-List: Information about an e-mail mailing list. Also includes links to other online support groups. (Marfan Syndrome) http://www.marfan-list.org University College London: The Timing of Elective Aortic Root Replacement in the Marfan Syndrome University College London: The Timing of Elective Aortic Root Replacement in the Marfan Syndrome: Includes a survey for study and links to useful sites. (Marfan Syndrome) http://www.ucl.ac.uk/~ucahywc/ A Diary about Marfan's A Diary about Marfan's: Marfan's patients diary of the diseases events in her life. Includes a list of links. (Marfan Syndrome) http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html Canadian Marfan Association Canadian Marfan Association: Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease. (Marfan Syndrome) http://www.marfan.ca/ Marfan Syndrome: Does Diet Play a Role Marfan Syndrome: Does Diet Play a Role: Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet. (Marfan Syndrome) http://www.ctds.info/marfan.html Univ. of Washington - Marfan Syndrome Univ. of Washington - Marfan Syndrome: What the disease is and includes the impacts on daily life. (Marfan Syndrome) http://www.orthop.washington.edu/arthritis/types/marfan/01 Slovak Marfan Association Slovak Marfan Association: The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care. (Marfan Syndrome) http://members.fortunecity.com/marfan Children's Heart Institute: What is Marfan Syndrome? Children's Heart Institute: What is Marfan Syndrome?: Includes information on heart, skeletal, eye, other, causes, risks, management, and Surgery. Assisted by many graphics and a "tour" to help understand the disease. (Marfan Syndrome) http://www.childrenheartinstitute.org/educate/marfan/marfan.htm International Federation of Marfan Syndrome Organizations International Federation of Marfan Syndrome Organizations: A global information center providing links to Organizations around the world. (Marfan Syndrome) http://www.marfanworld.org/ Guide to Marfans Syndrome Guide to Marfans Syndrome: Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals. (Marfan Syndrome) http://www.marfanssyndrome.net Swedish Marfan Association Swedish Marfan Association: Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association. (Marfan Syndrome) http://user.tninet.se/~sda301a/ Life and Issues of Marfan's Syndrome Life and Issues of Marfan's Syndrome: Personal site by which describes the pathology and gives a bit of advice. (Marfan Syndrome) http://www.io.com/~cortese/marfan/ Yahoo! Support Group Yahoo! Support Group: Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person. (Marfan Syndrome) http://health.groups.yahoo.com/group/Marfan_Syndrome/ Central Ohio Marfan Support Group Central Ohio Marfan Support Group: Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings. (Marfan Syndrome) http://www.homestead.com/marfansupport/ Marfan Syndrome Marfan Syndrome: Online chapter from The Merck Manual of Medical Information. (Marfan Syndrome) http://www.merck.com/mrkshared/mmanual_home2/sec23/ch279/ch279c.jsp South African Marfan Syndrome Organisation South African Marfan Syndrome Organisation: Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis. (Marfan Syndrome) http://www.marfan.org.za Marfan Association UK Marfan Association UK: The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue. (Marfan Syndrome) http://www.marfan.org.uk The Mystery of Akhenaten: Genetics or Aesthetics? The Mystery of Akhenaten: Genetics or Aesthetics?: A history of the pharoah along with theories applied to what he may have had, including Marfan's. (Marfan Syndrome) http://www.heptune.com/Marfans.html Living With Marfans Living With Marfans: This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way. (Marfan Syndrome) http://jrmarfan58.com Questions and Answers about Marfan Syndrome Questions and Answers about Marfan Syndrome: From the National Institutes of Health. (Marfan Syndrome) http://www.niams.nih.gov/hi/topics/marfan/marfan.htm