Ehlers-Danlos Syndrome (Connective Tissue)

Ehlers-Danlos Syndrome Sites:

"China Doll" Syndrome "China Doll" Syndrome: Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included. (Ehlers-Danlos Syndrome) http://moondancer.150m.com/ehlers.html Ehlers-Danlos Syndrome, Philadelphia Chapter Ehlers-Danlos Syndrome, Philadelphia Chapter: Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities. (Ehlers-Danlos Syndrome) http://hometown.aol.com/daddio5600/ Ehlers-Danlos Syndrome Medical Information Ehlers-Danlos Syndrome Medical Information: Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more. (Ehlers-Danlos Syndrome) http://www.medicinenet.com/ehlers-danlos_syndrome/index.htm Hypermobility Portal Hypermobility Portal: Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders. (Ehlers-Danlos Syndrome) http://hypermobility.objectis.net/ Coalition for Heritable Disorders of Connective Tissue Coalition for Heritable Disorders of Connective Tissue: Research organization for genetic connective tissue disorders. (Ehlers-Danlos Syndrome) http://www.chdct.org Ehlers-Danlos National Foundation - Michiana Branch Ehlers-Danlos National Foundation - Michiana Branch: Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps. (Ehlers-Danlos Syndrome) http://smackdabdesign.com/mednf/ Oral Manifestations of Ehlers-Danlos Syndrome Oral Manifestations of Ehlers-Danlos Syndrome: EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail. (Ehlers-Danlos Syndrome) http://www.cda-adc.ca/jcda/vol-67/issue-6/330.html Voluntary Recall of Vioxx Voluntary Recall of Vioxx: Press release about the recall of Vioxx, a drug commonly used to treat EDS-related arthritis. If you have been taking this medication please contact your doctor immediately for instructions. (Ehlers-Danlos Syndrome) http://www.vioxx.com/rofecoxib/vioxx/index.jsp Spanish Ehlers-Danlos and Hypermobility Syndromes Association Spanish Ehlers-Danlos and Hypermobility Syndromes Association: (SPANISH LANGUAGE) Provides support for EDS/HMS patients, doctors, and the general public. (Ehlers-Danlos Syndrome) http://asedh.org NORD: Ehlers-Danlos Syndrome NORD: Ehlers-Danlos Syndrome: Information about EDS from the National Organization for Rare Disorders. (Ehlers-Danlos Syndrome) http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers%20Danlos%20Syndrome Sandy Simmons' Connective Tissue Disorder Site Sandy Simmons' Connective Tissue Disorder Site: Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others) (Ehlers-Danlos Syndrome) http://www.ctds.info/ Arthritis Insight-EDS Tips for Surgery Arthritis Insight-EDS Tips for Surgery: If you or a family member with EDS needs surgery, read this and share it with your doctor. (Ehlers-Danlos Syndrome) http://arthritisinsight.com/medical/surgery/eds.html Ehlers-Danlos Syndrome Support Group Ehlers-Danlos Syndrome Support Group: This site offers extensive information for patients and doctors, plus links. (Ehlers-Danlos Syndrome) http://www.ehlers-danlos.org Hypermobility Forum Hypermobility Forum: This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain management tips from fellow patients. (Ehlers-Danlos Syndrome) http://www.marge.com/hypermobility/ The Canadian Ehlers-Danlos Association The Canadian Ehlers-Danlos Association: Working together to provide assistance, support and resources for people living with this rare genetic disorder. (Ehlers-Danlos Syndrome) http://www.ehlersdanlos.ca/ Department of Pathology Department of Pathology: Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS. (Ehlers-Danlos Syndrome) http://www.pathology.washington.edu/clinical/collagen/guidelines/ehlersdanlos.php Hypermobility Blog Hypermobility Blog: A sufferer writes about her daily experiences with hypermobile joints. (Ehlers-Danlos Syndrome) http://hypermobility.blogspot.com/ Ehlers-Danlos National Foundation Ehlers-Danlos National Foundation: American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups. (Ehlers-Danlos Syndrome) http://www.ednf.org/ Ehlers-Danlos Syndrome Information Ehlers-Danlos Syndrome Information: A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department. (Ehlers-Danlos Syndrome) http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01 Hypermobility & Fibromyalgia Support Site Hypermobility & Fibromyalgia Support Site: Offers information & support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders. (Ehlers-Danlos Syndrome) http://anaiis.tripod.com/hmedfm/index.html The Hypermobility Syndrome Association The Hypermobility Syndrome Association: HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, message boards, and much more. (Ehlers-Danlos Syndrome) http://www.hypermobility.org/ eMedicine - Ehlers-Danlos Syndrome eMedicine - Ehlers-Danlos Syndrome: Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments. (Ehlers-Danlos Syndrome) http://www.emedicine.com/derm/topic696.htm New York / New Jersey Ehlers-Danlos and Hypermobility New York / New Jersey Ehlers-Danlos and Hypermobility: Offers a support, message and discussion center for NY/NJ ehlers-danlos patients. (Ehlers-Danlos Syndrome) http://disc.server.com/Indices/163893.html Ehlers-Danlos Hope Ehlers-Danlos Hope: A Syrian patient gives a personal plea for better medical support and research. (Ehlers-Danlos Syndrome) http://ehler.8m.com EDS Today EDS Today: The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide. (Ehlers-Danlos Syndrome) http://www.edstoday.org/ Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome: While EDS and Arthritis are two separate diseases, there are many characteristics in common. Additionally, EDS patients are at risk of developing OA. In addition to EDS information, site provides valuable pain and life management resources for patients. (Ehlers-Danlos Syndrome) http://www.arthritis.org/conditions/diseasecenter/eds.asp Ehlers Danlos Foundation of New Zealand Ehlers Danlos Foundation of New Zealand: Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public. (Ehlers-Danlos Syndrome) http://www.edfnz.org.nz Electronic Textbook of Hand Surgery Electronic Textbook of Hand Surgery: Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated. (Ehlers-Danlos Syndrome) http://www.eatonhand.com Wheeless Textbook of Orthopaedics Wheeless Textbook of Orthopaedics: Technical information on joints, how they should work, and treatments for when they do not. (Ehlers-Danlos Syndrome) http://www.wheelessonline.com/ HealthWise: Ehlers Danlos Syndrome HealthWise: Ehlers Danlos Syndrome: Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types. (Ehlers-Danlos Syndrome) http://hw.healthdialog.com/kbase/nord/nord240.htm EDS Living - a Journal EDS Living - a Journal: Learn what it's like to live with EDS for this woman and her children by following her online journal. (Ehlers-Danlos Syndrome) http://www.livejournal.com/users/edsliving/ Ehlers-Danlos Syndrome Linked to Orthostatic Intolerance Ehlers-Danlos Syndrome Linked to Orthostatic Intolerance: Explores connection between EDS and low blood pressure. (Ehlers-Danlos Syndrome)[PDF] http://www.potsplace.com/images/newsletter2.pdf American Massage Therapy Association - The Hypermobile Client/Therapist American Massage Therapy Association - The Hypermobile Client/Therapist: Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ. (Ehlers-Danlos Syndrome) http://www.amtamassage.org/journal/olcott2.html Diagnose-Me: Treatments: Prolotherapy Diagnose-Me: Treatments: Prolotherapy: Some EDS patients have obtained excellent results with prolotherapy treatments. (Ehlers-Danlos Syndrome) http://www.diagnose-me.com/treat/T85233.html