Personal Pages (Genetic Disorders)

Personal Pages further on these related pages:

Cystic Fibrosis@ Down Syndrome@

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Personal Pages Sites:

Story of Robert Purkis Story of Robert Purkis: A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life. (Personal Pages) http://swpurkis.pwp.blueyonder.co.uk/index.html Alpha1 Antitrypsine Deficiency Alpha1 Antitrypsine Deficiency: One man's perspective and journey with A1AD and a list of links and other resources from the internet. (Personal Pages) http://home.att.net/~a1ad/intro.htm Maddy's Page Maddy's Page: The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites. (Personal Pages) http://members.aol.com/kymwig Joy's Page Joy's Page: Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly. (Personal Pages) http://www.lebaronfamily.com Ashly's Skeletal Dysplasia Ashly's Skeletal Dysplasia: A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites. (Personal Pages) http://www.angelfire.com/or2/ashlysworldofwonders/about.html XXXXY Syndrome XXXXY Syndrome: Information on this rare chromosomal abnormality. (Personal Pages) http://www.xxxxysyndrome.com Taryn's World: About Switches Taryn's World: About Switches: Personal page for kids and parents about genetic disorders, especially mannosidosis. (Personal Pages) http://www.tarynsworld.org/taryn/switches.htm Robert Kenneth Picklesimer Robert Kenneth Picklesimer: Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project. (Personal Pages) http://www.picklesimers.com/robert_kenneth.html Treacher Collins Syndrome - A Personal View Treacher Collins Syndrome - A Personal View: UK based website, containing information about the disorder, with helpful links and discussion forum. (Personal Pages) http://www.treachercollins.co.uk