Organizations (Genetic Disorders)

Organizations Sites:

Lysosomal Diseases New Zealand Lysosomal Diseases New Zealand: Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases. (Organizations) http://www.ldnz.org.nz Genetic Information and Patient Services, Inc (GAPS) Genetic Information and Patient Services, Inc (GAPS): Links to online definitions, information sites, and support groups for genetic disorders and birth defects. (Organizations) http://www.icomm.ca/geneinfo Hereditary Hemorrhagic Telangiectasia Foundation International, Inc. Hereditary Hemorrhagic Telangiectasia Foundation International, Inc.: Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general publi (Organizations) http://www.hht.org/ Genetic Interest Group Genetic Interest Group: Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided. (Organizations) http://www.gig.org.uk American Society of Genetic Disorders American Society of Genetic Disorders: Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics. (Organizations) http://www.ashg.org/genetics/ashg/ashgmenu.htm Australian MPS & Related Diseases Society Australian MPS & Related Diseases Society: Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events. (Organizations) http://www.mpssociety.org.au Hereditary Disease Foundation Hereditary Disease Foundation: Information about this non profit organization, news, newsletters, recommended reading and contact details. (Organizations) http://www.hdfoundation.org