Additional
Information: Ectodermal Dysplasia (ED) is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified. The Ectodermal Dysplasias are heritable conditions in which there are abnormalities of two or more ectod
Ectodermal Dysplasia Sites:
The Andy Fund The Andy Fund: Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene. (Ectodermal Dysplasia) http://www.andy.org.mx
Ectodermal Dysplasia Society Ectodermal Dysplasia Society: Information about the organization as well as the ED condition. Includes links, news articles and contact details. (Ectodermal Dysplasia) http://www.ectodermaldysplasia.org/
The Ectodermal Dysplasia Mailing List The Ectodermal Dysplasia Mailing List: Includes instructions on joining the list, FAQs and links to further resources. (Ectodermal Dysplasia) http://hometown.aol.com/charliein/ed/home.html
National Foundation for Ectodermal Dysplasia National Foundation for Ectodermal Dysplasia: ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services. (Ectodermal Dysplasia) http://www.nfed.org/
NORD: Ectodermal Dysplasias NORD: Ectodermal Dysplasias: Offers synonyms, a general discussion and resources. (Ectodermal Dysplasia) http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias
The CaF Directory The CaF Directory: Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing. (Ectodermal Dysplasia) http://www.cafamily.org.uk/Direct/e14.html
Additional
Information: Ectodermal Dysplasia (ED) is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified. The Ectodermal Dysplasias are heritable conditions in which there are abnormalities of two or more ectod
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