Additional
Information: Features include: macroglossia, a large tongue which may cause breathing, feeding or speech difficulties; umbilical hernia or exomphalos; overgrowth, children are bigger than their contemporaries; hemihypertrophy, one side of the body grows more than the
Beckwith-Wiedemann Syndrome Sites:
Beckwith-Wiedemann Family Forum Beckwith-Wiedemann Family Forum: A way for people from around the world who are interested in BWS to get support and share information. (Beckwith-Wiedemann Syndrome) http://www.geocities.com/beckwith_wiedemann/
The CaF Directory The CaF Directory: A description of beckwith-wiedemann syndrome, features, and possible complications. Also information about a support group. (Beckwith-Wiedemann Syndrome) http://www.cafamily.org.uk/Direct/b12.html
Beckwith-Wiedemann Family Chat Forum Beckwith-Wiedemann Family Chat Forum: An international email discussion group promoting the exchange of Beckwith-Wiedemann Syndrome (BWS) related information and support. (Beckwith-Wiedemann Syndrome) http://groups.yahoo.com/group/bwschat
Beckwith-Wiedemann and Related Disorders Victoria Beckwith-Wiedemann and Related Disorders Victoria: Information resource for families affected by the overgrowth disorders Beckwith-Wiedemann Syndrome, Simpson-Golabi-Behmel Syndrome or Isolated Hemihypertrophy. (Beckwith-Wiedemann Syndrome) http://www.geocities.com/bwsandsgbs/BARDVicindex.html
BWSN: Beckwith-Wiedemann Syndrome BWSN: Beckwith-Wiedemann Syndrome: Information about this organization, created for parents, professionals, and others interested in this disease. An invitation to join an email support group. (Beckwith-Wiedemann Syndrome) http://beckwith-wiedemann.org/index.html
Adam.com: An Overview Adam.com: An Overview: A definition of beckwith-wiedemann syndrome, along with a look at the alternate names, causes, incidence and risk factors. (Beckwith-Wiedemann Syndrome) http://www.nlm.nih.gov/medlineplus/ency/article/001186.htm
Beckwith-Wiedemann Support Group Beckwith-Wiedemann Support Group: UK based support group. Offers a database of information and puts parents in contact with others in their locality. (Beckwith-Wiedemann Syndrome) http://www.ukindex.info/bwsg
National Library of Medicine National Library of Medicine: weckwith-wiedemann syndrome, a list of synonyms, a summary and a major features. (Beckwith-Wiedemann Syndrome) http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome052.html
Keep Kids Healthy Keep Kids Healthy: A discussion of beckwith-wiedemann syndrome, its features and treatments. (Beckwith-Wiedemann Syndrome) http://www.keepkidshealthy.com/welcome/conditions/beckwithwiedemann.html
Additional
Information: Features include: macroglossia, a large tongue which may cause breathing, feeding or speech difficulties; umbilical hernia or exomphalos; overgrowth, children are bigger than their contemporaries; hemihypertrophy, one side of the body grows more than the
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