Additional
Information: Batten Disease is named after the British pediatrician who first described it in 1903. Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs). Although Batte
Batten Sites:
The Luke and Rachel Batten Foundation The Luke and Rachel Batten Foundation: Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease. (Batten) http://lrbf.org
Batten Disease Support and Research Association Batten Disease Support and Research Association: BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients. (Batten) http://www.bdsra.org/
Batten Disease Family Association Batten Disease Family Association: Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom. (Batten) http://www.bdfauk.freeserve.co.uk/
Batten Disease Information Page Batten Disease Information Page: Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. (Batten) http://www.ninds.nih.gov/health_and_medical/disorders/batten.htm
Nathan's Battle Nathan's Battle: Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure. (Batten) http://www.nathansbattle.com
The Natey Foundation The Natey Foundation: Information for parents and families of Battens victims. (Batten) http://www.nateyfoundation.org/
seeAbility - Juvenile Battens Disease seeAbility - Juvenile Battens Disease: An in depth article on this disorder, includes the stages of the disease and the symptoms. (Batten) http://www.seeability.org/randd/jboverview.htm
Additional
Information: Batten Disease is named after the British pediatrician who first described it in 1903. Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs). Although Batte
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