Congenital (Heart Disease)

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Congenital Sites:

AMA: Statement for Health Care Professionals AMA: Statement for Health Care Professionals: Guidelines for evaluation and management of common congenital cardiac problems in infants, children, and adolescents. From the committee on congenital cardiac defects of the council on cardiovascular disease in the young. (Congenital) http://www.americanheart.org/presenter.jhtml?identifier=1210 Congenital Heart Diseases Their Study and Treatment Congenital Heart Diseases Their Study and Treatment: A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999) (Congenital) http://www.redtail.net/owc Palliative Operations Palliative Operations: The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot, that lead up to the final correction surgery. (Congenital) http://heartdisease.about.com/library/weekly/aa112397.htm Dextrocardia with Situs Inversus Dextrocardia with Situs Inversus: Good information on the extremely rare condition of Dextrocardia with Situs Inversus. Causes, treatment, pictures and a support forum are available to ask others affected by this disorder. (Congenital) http://www.laughs.com.au/sid/ Ventricular Septal Defect Ventricular Septal Defect: VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the two lower chambers of the heart. An article from About.com with Richard N. Fogoros. (Congenital) http://heartdisease.about.com/library/weekly/aa020898.htm Adult Congenital Heart Association Adult Congenital Heart Association: Information, resources and support for adults with congenital heart disease. (Congenital) http://www.achaheart.org/ Grown Up Congenital Heart Patients Association (GUCH) Grown Up Congenital Heart Patients Association (GUCH): Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter. (Congenital) http://www.guch.org.uk Coping with Congenital Heart Disease in Your Baby Coping with Congenital Heart Disease in Your Baby: Article with some useful information, published by The American Academy of Family Physicians. (Congenital) http://www.aafp.org/afp/990401ap/990401d.html Our Little Braveheart Our Little Braveheart: Jake was born with Tetralogy of Fallot. This is his story along with some pictures. (Congenital) http://pages.ivillage.com/stephandjake/braveheart/ Fetal Heart Surgery - The Issues Fetal Heart Surgery - The Issues: The fascinating concept of operating on heart disease while a baby is still unborn may soon become reality. Read about the issues, the controversies, the potential. (Congenital) http://heartdisease.about.com/library/weekly/aa022298.htm Congenital Heart Disease Treatments Congenital Heart Disease Treatments: Short and simple explanations of the different procedures used in treating heart birth defects. (Congenital) http://www.americanheart.org/presenter.jhtml?identifier=4580 The Children's Heart Society The Children's Heart Society: Information about this non-profit, volunteer based support group, dedicated to helping families affected by Congenital Heart Disease/Defects. (Congenital) http://www.childrensheart.org/ Persistent Pulmonary Hypertension of the Newborn Persistent Pulmonary Hypertension of the Newborn: A definition along with look at the diagnosis, treatment and the prognosis, from the University of Washington Academic Medical Center. (Congenital) http://neonatal.peds.washington.edu/NICU-WEB/pphn.stm Resources from California State University Resources from California State University: Very extensive list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support. (Congenital) http://www.csun.edu/~hcmth011/heart/ Heart Defects: Truncus Arteriosus Type 1 Heart Defects: Truncus Arteriosus Type 1: Information, diagram, symptoms and medical treatment, from the Children's Heart Institute. (Congenital) http://www.childrenheartinstitute.org/educate/defects/truncus1.htm CongenitalHeartDefects.com CongenitalHeartDefects.com: Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals. (Congenital) http://www.congenitalheartdefects.com CHD Awareness Day CHD Awareness Day: The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims. (Congenital) http://www.tchin.org/aware.htm Congenital Heart Disease Information and Resources Congenital Heart Disease Information and Resources: Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals. (Congenital) http://www.tchin.org Hearts Of Hope Hearts Of Hope: Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia. (Congenital) http://www.heartsofhope.iinet.net.au/ Mamas Health Mamas Health: Contains a lot of information about acyanotic congenital defects. (Congenital) http://www.mamashealth.com/acyanotic.asp Minimal Invasive Congenital Heart Surgery Minimal Invasive Congenital Heart Surgery: An article about treating birth defects of the heart using this techniques. (Congenital) http://heartdisease.about.com/library/weekly/aa011198.htm Cyanotic Congenital Birth Defects Cyanotic Congenital Birth Defects: Information on a wide variety of congenital heart defects, from Mama's Health. (Congenital) http://www.mamashealth.com/cyanotic.asp Feeding Your Infant With Congenital Heart Disease Feeding Your Infant With Congenital Heart Disease: American Heart Association gives details on baby's growth, how to feed your baby, feeding tips, breastfeeding, formula feeding, tube feeding, starting solid foods, asking for help, heart medication and feeding and looking ahead. (Congenital) http://www.americanheart.org/presenter.jhtml?identifier=4885 American Heart Association American Heart Association: The AHA website is a simple introduction to the concept of congenital heart disease, with layperson explanations of the various conditions, tests for diagnosis and treatment options. (Congenital) http://www.americanheart.org/presenter.jhtml?identifier=1477 About.com About.com: Information about congenital heart defects, and February 14th being recognized as a day for hearts. (Congenital) http://heartdisease.about.com/blchd.htm HLHS Information HLHS Information: Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company. (Congenital) http://www.hlhsinfo.homestead.com International Society for Adult Congenital Cardiac Disease International Society for Adult Congenital Cardiac Disease: The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members. (Congenital) http://www.isaccd.org/ CHD Support Graphics CHD Support Graphics: A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects of the heart. (Congenital) http://heartdisease.about.com/chdgraphics.htm Miami Children's Hospital Miami Children's Hospital: Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments. (Congenital) http://www.pediatricheartsurgery.com MedicineNet MedicineNet: Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments. (Congenital) http://www.about-heartdisease.com Heart Disease Online Heart Disease Online: A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language. (Congenital) http://www.heartdiseaseonline.com Fontan Operation Fontan Operation: Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle. (Congenital) http://www.FontanOperation.com/fontan.htm