Fanconi (Anemia)

Fanconi Sites:

Hope for Henry Hope for Henry: This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia. (Fanconi) http://www.hsg.org/ Fanconi Anemia Fact Sheet - University of Pittsburgh Fanconi Anemia Fact Sheet - University of Pittsburgh: Brochure about its diagnosis and treatment published by the University of Pittsburgh Department of Human Genetics, including links to support and diagnosis resources. (Fanconi) http://www.pitt.edu/~edugene/Fanconi.pdf Fanconi Anemia Web Fanconi Anemia Web: An informational site for this disorder. (Fanconi) http://members.tripod.com/fanconianemiaweb Fanconi Anemia Research Fund Fanconi Anemia Research Fund: To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide. (Fanconi) http://www.fanconi.org/ Yahoo! Groups: blackfan Yahoo! Groups: blackfan: Open mailing list for Diamond Black Fan Anemia sufferers. (Fanconi) http://groups.yahoo.com/group/blackfan/ Fanconi Anemia: the Frohnmayer Family's Experience Fanconi Anemia: the Frohnmayer Family's Experience: The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi anemia, an inherited, usually fatal illness. (Fanconi) http://darkwing.uoregon.edu/~lfrohn/ Yahoo! Groups: fanconi Yahoo! Groups: fanconi: Discussion list for fanconi sufferers. (Fanconi) http://groups.yahoo.com/group/fanconi/ Adam Day Adam Day: Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund. (Fanconi) http://www.adam.interactiveinc.com/ Fanconi Canada Fanconi Canada: Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families. (Fanconi) http://www.fanconicanada.org Fanconi Anemia Fact Sheet - Jewish Genetic Diseases Fanconi Anemia Fact Sheet - Jewish Genetic Diseases: Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources. (Fanconi) http://www.mazornet.com/genetics/fanconi_anemia.htm Family Village: Fanconi Anemia Family Village: Fanconi Anemia: Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease. (Fanconi) http://www.familyvillage.wisc.edu/lib_fanc.htm Alex and Matt Pearl Alex and Matt Pearl: Personal stories of two children fighting Fanconi Anemia. (Fanconi) http://www.alexandmatt.com B Positive, Inc. B Positive, Inc.: A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas. (Fanconi) http://www.bpositiveinc.com Fanconi Anaemia Fanconi Anaemia: A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin. (Fanconi) http://www.cancerindex.org/ccw/fanconi.htm