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Facial Differences (Conditions and Diseases)

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Apert Syndrome
Cleft Lip and Palate
Craniosynostosis
Langer-Giedion Syndrome
Parry-Rombergs Syndrome
Smith-Magenis Syndrome@
Stickler's Syndrome
Treacher Collins Syndrome

Facial Differences Sites:

Beneath the Surface Beneath the Surface
Beneath the Surface Offers support and understanding to individuals of facial difference.
http://beneaththesurfaceweb.com
The DRM WebWatcher: Facial Differences The DRM WebWatcher: Facial Differences
The DRM WebWatcher: Facial Differences A Disability Resources monthly guide to online resources about craniofacial differences.
http://www.disabilityresources.org/FACE.html
Crouzon's Bridge of Hope Foundation Crouzon's Bridge of Hope Foundation
Crouzon's Bridge of Hope Foundation Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
http://www.crouzonsbridge.org
Let's Face It UK Let's Face It UK
Let's Face It UK Friendship and support for people who have a facial difference.
http://www.letsfaceit.force9.co.uk
Children's Craniofacial Association Children's Craniofacial Association
Children's Craniofacial Association Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
http://www.ccakids.com
Foundation for Faces of Children Foundation for Faces of Children
Foundation for Faces of Children Expert information for families and health care professionals about craniofacial conditions.
http://www.facesofchildren.org
Let's Face It USA Let's Face It USA
Let's Face It USA A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
http://www.faceit.org/
The Craniofacial Foundation of Arizona The Craniofacial Foundation of Arizona
The Craniofacial Foundation of Arizona Provides information and support for people with head and face disfigurement. Happy Faces Family Network is a non-medical organization of volunteers, aiming to raise public awareness of craniofacial problems, promoting community acceptance and understandi
http://www.azcranio.com/support.html
FACES: The National Craniofacial Association FACES: The National Craniofacial Association
FACES: The National Craniofacial Association Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
http://www.faces-cranio.org
Acne Support Group Acne Support Group
Acne Support Group Information and support on acne, including top ten tips, beauty tips and problems.
http://www.stopspots.org/
AboutFace AboutFace
AboutFace International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
http://www.Aboutfaceinternational.org
Changing Faces Changing Faces
Changing Faces UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
http://www.changingfaces.co.uk
Support Works Online Support Works Online
Support Works Online Resources to find or form support groups related to facial difference. Information on medical research.
http://www.supportworks.org/cat806.htm
Sincere Meditations Sincere Meditations
Sincere Meditations Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
http://www.davidroche.com/lamott.htm
Cancer Of The Eye Linkline (CELL) Cancer Of The Eye Linkline (CELL)
Cancer Of The Eye Linkline (CELL) UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
http://pages.zoom.co.uk/cell/index.htm
XP Support Group XP Support Group
XP Support Group UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
http://xpsupportgroup.org.uk
Moebius Syndrome Moebius Syndrome
Moebius Syndrome Moebius Syndrome support, information and resource site.
http://www.moebius1.org
Birthmark Support Group Birthmark Support Group
Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
http://www.birthmarksupportgroup.org.uk/
Disfigurement Guidance Centre Disfigurement Guidance Centre
Disfigurement Guidance Centre Support and information for people with facial and other disfigurements via post or telephone. Details of International Skin Laser Directory and booklets. Based in Scotland.
http://www.dgc.org.uk/
The Personal Side of Craniofacial Differences The Personal Side of Craniofacial Differences
The Personal Side of Craniofacial Differences Personal accounts of living with craniofacial conditions, and related webrings.
http://members.tripod.com/~Craniofacial/index.html
John Hopkins Center for Craniofacial Development and Disorders John Hopkins Center for Craniofacial Development and Disorders
John Hopkins Center for Craniofacial Development and Disorders Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
http://www.hopkinsmedicine.org/craniofacial/
The New Face Foundation The New Face Foundation
The New Face Foundation A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
http://www.newfacefoundation.com
Crouzon Support Network Crouzon Support Network
Crouzon Support Network A network designed to offer support to individuals and families dealing with Crouzon's Syndrome and other craniofacial anomalies.
http://www.crouzon.org
The Craniofacial Society of Great Britain and Ireland The Craniofacial Society of Great Britain and Ireland
The Craniofacial Society of Great Britain and Ireland Information about the society, which is a multidisciplinary forum for specialists.
http://www.cfsgb.org.uk/

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