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Genetic Conditions Rare Conditions
Genetic Conditions Rare Conditions: Lay advocacy and support groups, information on genetic conditions birth defects for professionals, educators, and individuals. (Conditions and Diseases)
http://www.kumc.edu/gec/support/ |
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BEES (Bladder Exstrophy/Epispadias Support) UK
BEES (Bladder Exstrophy/Epispadias Support) UK: Offers support by telephone and letter, raising awareness about the condition and giving advice and information on incontinence. Biannual Newsletter. (Conditions and Diseases)
http://www.ukselfhelp.info/bees |
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Autoimmune Forum
Autoimmune Forum: A place to share experiences and information, both for those suffering from an autoimmune disease and for their loved ones. (Conditions and Diseases)
http://www.autoimmuneforum.org |
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Parkinsons Disease Caregiver Information
Parkinsons Disease Caregiver Information: Virtual support group. Essential information for anyone who is caring for someone with Parkinson's disease. Discussion forum and support group information. (Conditions and Diseases)
http://www.myparkinsons.org |
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National Institute of Diabetes and Digestive and Kidney Diseases
National Institute of Diabetes and Digestive and Kidney Diseases: Conducts and supports research on many of the most serious diseases affecting public health. Aims, staff, research, funding opportunities, laboratories and health information. (Conditions and Diseases)
http://www.niddk.nih.gov/ |
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CIDP Organization of USA
CIDP Organization of USA: A non profit support group for Chronic Inflammatory Demyelinating Polyradiculoneuropathy in USA. (Conditions and Diseases)
http://www.cidpusa.org |
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West Virginia Lymphedema Network
West Virginia Lymphedema Network: The West Virginia Lymphedema Network is a volunteer support group in West Virginia. The mission is educate and increase awareness of lymphedema treatment, discuss medical research, and insurance issues. (Conditions and Diseases)
http://www.wvlymph.org |
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Lose the Back Pain
Lose the Back Pain: Offers articles and a discussion forum on all aspects of back pain. (Conditions and Diseases)
http://www.losethebackpain.com |
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B.C. Balance & Dizziness Disorders Society
B.C. Balance & Dizziness Disorders Society: Information and support for persons with balance, dizziness, and all vestibular disorders. To develop awareness of the issues surrounding these disorders. (Conditions and Diseases)
http://www.balanceanddizziness.org |
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Montgomery County Stroke Association (of Maryland)
Montgomery County Stroke Association (of Maryland): This website provides stroke survivors and caregivers with info about strokes. (Conditions and Diseases)
http://www.mcstroke.org |
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The TBI Den
The TBI Den: A haven for traumatic and general brain injury survivors, their families and friends. (Conditions and Diseases)
http://members.lycos.co.uk/thetbiden/ |
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Infectious Diseases on Medbroadcast
Infectious Diseases on Medbroadcast: Support and information on HIV, Herpes and Hepatitis. Provides clear and concise information on transmission, symptoms, testing, vaccines, medications, and dietary issues related to these diseases. (Conditions and Diseases)
http://www.medbroadcast.com/health_topics/infectious_diseases/ |
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Tri 2 Cure Sarcoma
Tri 2 Cure Sarcoma: A website containing information on Sarcoma. Further the efforts of David Rich raising money for Sarcoma Reearch by competing in the Ironman. (Conditions and Diseases)
http://www.tri2curesarcoma.com |
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Finger Nail Biting
Finger Nail Biting: A support group for chronic finger nail biters. (Conditions and Diseases)
http://www.fingernailbiting.com |
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North American Chronic Pain Society
North American Chronic Pain Society: Chronic pain can cause many problems. We are a Support Group who helps all in pain. (Conditions and Diseases)
http://www.nacps.us |
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AVM Arteriovenous Malformation
AVM Arteriovenous Malformation: AVM Hemangeoma and Capillary Malformation support group hosted by the mother of a son with multiple AVM's. (Conditions and Diseases)
http://aplasticcentral.com/avm |
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Christians with Chronic Invisible Illnesses
Christians with Chronic Invisible Illnesses: Links to several Christian groups for people with invisible illnesses such as CFS, FM and MCS. (Conditions and Diseases)
http://members.shaw.ca/zonaszone/christian.html |
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Annie Angels
Annie Angels: Support group for survivors and emotional survivors of the "silent killer" called Aneurysm. Offers love and support to abdominal and brain aneurysm survivors. (Conditions and Diseases)
http://groups.msn.com/AnnieAngels/welcomepage.msnw |
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Polio Echo, Inc
Polio Echo, Inc: Support group for people with Post-Polio Syndrome in the Phoenix, AZ area. There is information on the local chapters and their activities and speakers as well as updated articles and events to come. (Conditions and Diseases)
http://polioecho.org |
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NJ Foundation for the Blind
NJ Foundation for the Blind: Our organization provides the blind and visually disabled community with rehabilitation training, social events, and vacations. We are located in Denville, NJ at Diamond Spring Lodge. (Conditions and Diseases)
http://www.njffb.org/ |
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Brain Tumour Foundation (UK)
Brain Tumour Foundation (UK): The Brain Tumour Foundation (UK) provides support and information for those suffering from brain tumour. (Conditions and Diseases)
http://www.ukselfhelp.info/btf |
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Internet World by Stefanie Okelmann
Internet World by Stefanie Okelmann: Hip Dysplasia and the operation triple osteotomy, here you find the whole story about my hip dysplasia and the pain, the operation to fix it, including my X-rays with all information about recreation. (Conditions and Diseases)
http://www.okelmann.com |
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Association for Macular Diseases, Delaware Valley Chapter
Association for Macular Diseases, Delaware Valley Chapter: Macular Degeneration Support Group. (Conditions and Diseases)
http://www.dvamd.org |
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It's Your Life
It's Your Life: E-book on chronic disease management available for free online reading or download. (Conditions and Diseases)
http://www.stormpages.com/sbhagwat |
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Rsd Angels & Chronic Pain Angels
Rsd Angels & Chronic Pain Angels: This support group is for members, their family and friends who suffer from Rsd,Fibro and other Chronic Pain Conditions. (Conditions and Diseases)
http://groups.aol.com/survingrsd?mmch_=0 |
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Learning Disability History
Learning Disability History: Historical overview on the learning disability institution as well as being a resource for memorabilia and factual information on the three hospitals in Herfordshire: Cell Barnes, Harperbury and Leavesdon. (Conditions and Diseases)
http://www.learningdisabilityhistory.com |
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Alexander Foundation
Alexander Foundation: Alexander Foundation is a non-profit charitable institution that supports the funding and research of Cloverleaf Syndrome. (Conditions and Diseases)
http://www.thealexanderfoundation.com/ |
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Mycosis Fungoides UK
Mycosis Fungoides UK: An online support group for patients, relatives/friends of patients who have MF/CTCL. (Conditions and Diseases)
http://groups.msn.com/MycosisFungoidesUK |
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Neurosarcoidosis Support Group
Neurosarcoidosis Support Group: A support group for anyone with neurosarcoidosis, CNS sarcoid, systemic sarcoidosis, or anyone wanting more information on this rare disease. Includes live chats. (Conditions and Diseases)
http://health.groups.yahoo.com/group/neurosarcoidosis/ |
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Autoimmune Disease Support Boards
Autoimmune Disease Support Boards: Autoimmune disease Support Info, message boards, and chatroom. (Conditions and Diseases)
http://www.AIsupportboard.com |