Additional
Information: Characterized by a combination of three features, possibly due to the underdevelopment of the lower jaw. The lower jaw is abnormally small (micrognathia), the tongue is displaced downwards (glossoptosis), and there is an abnormal opening in the roof of th
Pierre Robin Syndrome Sites:
Contact a Family: Pierre Robin Syndrome Contact a Family: Pierre Robin Syndrome: Main features of the condition and possible causes. (Pierre Robin Syndrome) http://www.cafamily.org.uk/Direct/p24.html
NORD - Pierre Robin Syndrome NORD - Pierre Robin Syndrome: Sample report, plus links to organisations. [Fee required for full report] (Pierre Robin Syndrome) http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome
Chase's Story Chase's Story: Personal account of one child's experience of this condition. Includes photographs. (Pierre Robin Syndrome) http://www.pierrerobin.com
Pierre Robin Network Pierre Robin Network: Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts. (Pierre Robin Syndrome) http://www.pierrerobin.org
Additional
Information: Characterized by a combination of three features, possibly due to the underdevelopment of the lower jaw. The lower jaw is abnormally small (micrognathia), the tongue is displaced downwards (glossoptosis), and there is an abnormal opening in the roof of th
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