Additional
Information: Sanfilippo Syndrome (MPS III), an autosomal recessive hereditary disorder, is characterized by severe mental deterioration, mild physical defects and the excretion of heparan sulfate in the urine. There are four types of Sanfilippo Syndrome; types A and B
Sanfilippo Syndrome Sites:
Ben's Dream Ben's Dream: Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter. (Sanfilippo Syndrome) http://www.bensdream.org
MPS III: Sanfilippo Syndrome MPS III: Sanfilippo Syndrome: Information, including the causes, different forms, the inheritance and how the disorder progresses. (Sanfilippo Syndrome) http://www.mpssociety.org/mps3.html
NORD: Sanfilippo Syndrome NORD: Sanfilippo Syndrome: Offers a list of synonyms, a general discussion and further resources. (Sanfilippo Syndrome) http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sanfilippo%20Syndrome
Bennett Children's Foundation Bennett Children's Foundation: Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support. (Sanfilippo Syndrome) http://www.helpachild.net
Children's Medical Research Foundation Children's Medical Research Foundation: A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome. (Sanfilippo Syndrome) http://www.curekirby.org