Additional
Information: Information, support and advice concerning neurological disorders, in children ranging in age from newborn to pre-teen. This page was last updated on October 6th, 2008
NINDS: Infantile Spasms
Information including description, treatment options, prognosis, research and resource links. http://www.ninds.nih.gov/health_and_medical/disorders/infantilespasms.htm
L'Oiseau Bleu (The Blue Bird)
Non-profit organisation to fight against Sclerosing Subacute Panencephalitis, a.k.a. Van Bogaert Disease, a progressive neurological disorder caused by the measles virus. Includes information about the disease. http://oiseau.bleu.free.fr/en/en_welcome.php
Spinal Muscular Atrophy (SMA)
Provides information aimed at health professionals about this disease. Includes definition, classification, epidemiology, clinical features, therapy and research into the congenital condition. http://www.mdausa.org/research/munsat.html
Epilepsy in Children
Explores what epilepsy is, how it is diagnosed and surgical and other treatment options. http://ucneurology.uchicago.edu/Neurological_Disorders/Pediatric_Neuro_Disorders/Peds_Epilepsy/peds_epilepsy.html
Landau-Kleffner Syndrome
Information sheet compiled by National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/landaukleffnersyndrome_doc.htm
Hope for Muscular Dystrophy
Emotional and educational support for families who would like to learn more about this disease. Includes articles and stories. http://www.hopeformd.org
Integrated Neurocare
An independent service for children and young people and their families in Britain and abroad who may have a suspected neurological or neurodevelopmental impairment. http://www.integratedneurocare.com
Epilepsy in Young Children
A support platform for parents and other caregivers of children with epilepsy, consisting mostly of stories of individual children. http://www.kidsepilepsy.com
Understanding Spinal Muscular Atrophy
Offers extensive information for parents about the three forms of this disease: type I (Werdnig-Hoffman disease), type II, and type III (Kugelberg-Welander). http://www.fsma.org/booklet.htm
Brianna: Canavan Leukodystrophy
Personal page about how this neurological disorder affects children and their families. Provides links to resources and support. http://hometown.aol.com/ydb739094/brianna.html